ESPN/ERA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Welcome to the website of the ESPN/ERA Registry

The ESPN/ERA Registry has been developed to increase the amount and the quality of information on paediatric kidney replacement therapy (KRT). On this website, ESPN/ERA Registry activities and information on paediatric registries in general will be provided.

This year, the following papers have been published at the ESPN/ERA-Registry. Two papers written by Marjolein Bonthuis et. al. were published in Pediatric Nephrology: Ten-year trends in epidemiology and outcomes of pediatric kidney replacement therapy in Europe: data from the ESPN/ERA-EDTA Registry and Growth in children on kidney replacement therapy: a review of data from patient registries. The third paper by Michael Boehm et. al. was published in Transplantation: Kidney transplantation in small children: Association between body weight and outcome- A report from the ESPN/ERA-EDTA Registry.

The ESPN/ERA Registry highly welcomes paediatric nephrologists to work on the Registry data. Topics could include, but are not limited to, nephronopthesis and regional variation in FSGS. Examples of research projects or internships can be found here. For example Simeon Dupont, a medical doctor from Germany visited the Registry to work on a project on comorbidities.


Funding possibilities by for example the ESPN and the ERA fellowship programs are available. Please send a CVs and a motivation letter to Marjolein Bonthuis or contact her for more information at espn-reg@amc.uva.nl

Please contact us via espn-reg@amc.uva.nl if you would like to join the Registry, want more information on research projects or if you have any other question.

Thank you all for making the ESPN/ERA Registry work!

Enrico Vidal, Chair of the ESPN/ERA Registry
Sevcan Bakkaloglu, Vice-chair ESPN/ERA Registry
Kitty Jager, Registry Director of the ERA Registry
Marjolein Bonthuis, Coordinator ESPN/ERA Registry

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The annual report including
2017 and 2018 paediatric data
The new ESPN/ERA Registry newsletter is online.
download Paediatric Data 2018 download newsletter