ESPN/ERA-EDTA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Welcome to the website of the ESPN/ERA-EDTA Registry

The ESPN/ERA-EDTA registry has been developed to increase the amount and the quality of information on paediatric renal replacement therapy (RRT). On this website, ESPN/ERA-EDTA Registry activities and information on paediatric registries in general will be provided.

During the past months the following papers have been published at the ESPN/ERA-EDTA Registry. The first, titled Kidney Versus Combined Kidney and Liver Transplantation in Young People With Autosomal Recessive Polycystic Kidney Disease: Data From the European Society for Pediatric Nephrology/European Renal Association-European Dialysis and Transplant (ESPN/ERA-EDTA) Registry from Djalila Mekahli et. al., was published in Am J Kidney Dis. The second, by Nicholas Chesnaye et. al., was published by Kidney Int, on Mortality risk in European children with end-stage renal disease on dialysis.

The ESPN/ERA-EDTA Registry highly welcomes pediatric nephrologists to work on the registry data. Topics could include, but are not limited to, nephronopthesis and regional variation in FSGS. Examples of research projects or internships can be found here. For example Evgenia Preka, a paediatrician from Brussels visited the registry to work on eGFR at dialysis initiation in collaboration with the ESPN Dialysis working group. Bram Smit, a medical student from Amsterdam, has conducted his scientific internship on ESPN/ERA-EDTA Registry co-morbidity data.


Funding possibilities by for example the ESPN and the ERA-EDTA fellowship programs are available. Please send a CVs and a motivation letter to Marjolein Bonthuis or contact her for more information at espn-reg@amc.uva.nl

Please contact us via espn-reg@amc.uva.nl if you would like to join the registry, want more information on research projects or if you have any other question.

Thank you all for making the ESPN/ERA-EDTA registry work!

Jaap Groothoff, Chair of the ESPN/ERA-EDTA registry
Jerome Harambat, Vice-chair ESPN/ERA-EDTA registry
Kitty Jager, Registry Director of the ERA-EDTA registry
Marjolein Bonthuis, Coordinator ESPN/ERA-EDTA registry

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The annual report including 2014 Paediatric Data The new ESPN/ERA-EDTA Registry newsletter is online.
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