ESPN/ERA-EDTA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Welcome to the website of the ESPN/ERA-EDTA Registry

The ESPN/ERA-EDTA Registry has been developed to increase the amount and the quality of information on paediatric renal replacement therapy (RRT). On this website, ESPN/ERA-EDTA Registry activities and information on paediatric registries in general will be provided.

During the past months the following papers have been published at the ESPN/ERA-EDTA Registry. The first, titled Growth Patterns After Kidney Transplantation in European Children Over the Past 25 Years: An ESPN/ERA-EDTA Registry Study from Marjolein Bonthuis et. al., was published in Transplantation. The second, by Marjolein Bonthuis and Liz Cuperus et. al., was published by Kidney Int.:Results in the ESPN/ERA-EDTA Registry suggest disparities in access to kidney transplantation but little variation in graft survival of children across Europe.

The ESPN/ERA-EDTA Registry highly welcomes paediatric nephrologists to work on the Registry data. Topics could include, but are not limited to, nephronopthesis and regional variation in FSGS. Examples of research projects or internships can be found here. For example Simeon Dupont, a medical doctor from Germany visited the Registry to work on a project on comorbidities.


Funding possibilities by for example the ESPN and the ERA-EDTA fellowship programs are available. Please send a CVs and a motivation letter to Marjolein Bonthuis or contact her for more information at espn-reg@amc.uva.nl

Please contact us via espn-reg@amc.uva.nl if you would like to join the Registry, want more information on research projects or if you have any other question.

Thank you all for making the ESPN/ERA-EDTA Registry work!

Jerome Harambat, Chair of the ESPN/ERA-EDTA Registry
Enrico Vidal, Vice-chair ESPN/ERA-EDTA Registry
Kitty Jager, Registry Director of the ERA-EDTA Registry
Marjolein Bonthuis, Coordinator ESPN/ERA-EDTA Registry

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The annual report including
2017 Paediatric Data
The new ESPN/ERA-EDTA Registry newsletter is online.
download Paediatric Data 2017 download newsletter