ESPN/ERA-EDTA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Amsterdam Office

Currently there are 2 persons working for the Registy;

Marjolein Bonthuis
and Nick Chesnaye

They introduce themselves below

Marjolein Bonthuis

As coordinator of the Registry I will be responsible for maintaining close contact with all contributors to the registry. Other tasks include annual data collection and management, performing statistical analyses, preparing annual reports and scientific papers, and coordinating research activities of visiting researchers from various countries.

The paediatric end-stage renal disease population is a challenging and very interesting one, and the ESPN/ERA-EDTA registry provides a great basis for studying the epidemiology of childhood end-stage renal disease in Europe with the ultimate goal of improving their outcome. I very much appreciate your enthusiasm participating in the registry and I am very grateful to continue our collaboration.

Nick Chesnaye

As of March 2013, I started as a PhD student on the ESPN/ERA-EDTA registry.

I completed my Masters degree in Biomedical Sciences in Amsterdam, focusing on infectious disease epidemiology and international public health. I chose to conduct my research internships abroad, and enjoyed working in Vietnam on a malaria project, and at the Centers for Disease Control and Prevention, based in Atlanta, USA, on a mass drug distribution program to control worm infections in Cambodia.

After completing my Masters degree in 2011, I started work at a clinical research organization starting-up new clinical trials in the Netherlands on behalf of pharmaceutical companies. Although I gained valuable experience on clinical research and international collaboration, the work itself was focused on facilitating research, and not conducting it. I therefore decided to switch to the academic setting and found the ideal opportunity here at the Amsterdam office of the ESPN/ERA-EDTA registry.

My PhD will focus on the differences in pediatric renal replacement therapy (RRT) throughout Europe. Results will hopefully contribute to the goal of equal health care for European children on RRT. I look forward to all the projects still to come, and off course working together with you in the near future.