ESPN/ERA-EDTA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Published papers and abstracts

  
 
 
policies for authorship
 
 
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Mekahli D, van Stralen KJ, Bonthuis M, Jager KJ, Balat A, Benetti E, Godefroid N, Edvardsson VO, Heaf JG, Jankauskiene A, Kerecuk L, Marinova S, Puteo F, Seeman T, Zurowska A, Pirenne J, Schaefer F, Groothoff JW; ESPN/ERA-EDTA Registry
Kidney Versus Combined Kidney and Liver Transplantation in Young People With Autosomal Recessive Polycystic Kidney Disease: Data From the European Society for Pediatric Nephrology/European Renal Association-European Dialysis and Transplant (ESPN/ERA-EDTA) Registry
Am J Kidney Dis. 2016 Nov;68(5):782-788
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Holttš T, Bonthuis M, Van Stralen KJ, Bjerre A, Topaloglu R, Ozaltin F, Holmberg C, Harambat J, Jager KJ, Schaefer F, Groothoff JW
Timing of renal replacement therapy does not influence survival and growth in children with congenital nephrotic syndrome caused by mutations in NPHS1: data from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2016 Dec;31(12):2317-2325.
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Chesnaye NC, Schaefer F, Groothoff JW, Bonthuis M, Reusz G, Heaf JG, Lewis M, Maurer E, Paripovic D, Zagozdzon I, van Stralen KJ, Jager KJ
Mortality risk in European children with end-stage renal disease on dialysis
Kidney Int. 2016;1?8
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Hogan J, Couchoud C, Bonthuis M, Groothoff JW, Jager KJ, Schaefer F, Van Stralen KJ
Gender Disparities in Access to Pediatric Renal Transplantation in Europe
Am J Transplant. 2016 Jan 19. doi: 10.1111/ajt.13723. [Epub ahead of print]
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Tjaden LA, Noordzij M, van Stralen KJ, Kuehni CE, Raes A, Cornelissen EA, O'Brien C, Papachristou F, Schaefer F, Groothoff JW, Jager KJ; ESPN/ERA-EDTA Registry Study Group
Racial Disparities in Access to and Outcomes of Kidney Transplantation in Children, Adolescents, and Young Adults
Am J Kidney Dis. 2015 Nov 7. pii: S0272-6386(15)01255-X. doi: 10.1053/j.ajkd.2015.09.023. [Epub ahead of print]
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Harambat J, Bonthuis M, Groothoff JW, Schaefer F, Tizard EJ, Verrina E, van Stralen KJ, Jager KJ
Lessons learned from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2015 Oct 24. [Epub ahead of print]
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Krischock LA, van Stralen KJ, Verrina E, Tizard EJ, Bonthuis M, Reusz G, Hussain FK, Jankauskiene A, Novljan G, Spasojević-Dimitrijeva B, Podracka L, Zaller V, Jager KJ, Schaefer F; ESPN/ERA-EDTA Registry.
Anemia in children following renal transplantation-results from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2015 Sep 18. [Epub ahead of print]
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Lofaro D, Jager KJ, Abu-Hanna A, Groothoff JW, Arikoski P, Hoecker B, Roussey-Kesler G, Spasojević B, Verrina E, Schaefer F, van Stralen KJ; ESPN/ERA-EDTA Registry.
Identification of subgroups by risk of graft failure after paediatric renal transplantation: application of survival tree models on the ESPN/ERA-EDTA Registry.
Nephrol Dial Transplant. 2015 Aug 27. pii: gfv313. [Epub ahead of print]
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van Huis M, Bonthuis M, Sahpazova E, Mencarelli F, Spasojevic B, Reusz G, Caldas-Afonso A, Bjerre A, Baiko S, Vondrak K, Molchanova EA, Kolvek G, Zaikova N, Bohm M, Ariceta G, Jager KJ, Schaefer F, van Stralen KJ, Groothoff JW.
Considerable variations in growth hormone policy and prescription in paediatric end-stage renal disease across European countries-a report from the ESPN/ERA-EDTA registry.
Nephrol Dial Transplant. 2015 Apr 28. pii: gfv105. [Epub ahead of print]
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Bonthuis M, Busutti M, van Stralen KJ, Jager KJ, Baiko S, Bakkaloglu S, Battelino N, Gaydarova M, Gianoglio B, Parvex P, Gomes C, Heaf JG, Podracka L, Kuzmanovska D, Molchanova MS, Pankratenko TE, Papachristou F, Reusz G, Sanahuja MJ, Shroff R, Groothoff JW, Schaefer F, Verrina E.
Mineral Metabolism in European Children Living with a Renal Transplant: A European Society for Paediatric Nephrology/European Renal Association-European Dialysis and Transplant Association Registry Study
Clin J Am Soc Nephrol. 2015 Feb 20. pii: CJN.06200614. [Epub ahead of print]
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Chesnaye NC, Schaefer F, Groothoff JW, Caskey FJ, Heaf JG, Kushnirenko S, Lewis M, Mauel R, Maurer E, Merenmies J, Shtiza D, Topaloglu R, Zaicova N, Zampetoglou A, Jager KJ, van Stralen KJ
Disparities in treatment rates of paediatric end-stage renal disease across Europe: insights from the ESPN/ERA-EDTA registry
Nephrol Dial Transplant. 2015 Apr 2. pii: gfv064. [Epub ahead of print]
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Chesnaye N, Bonthuis M, Schaefer F, Groothoff JW, Verrina E, Heaf JG, Jankauskiene A, Lukosiene V, Molchanova EA, Mota C, Peco-Antic A, Ratsch IM, Bjerre A, Roussinov DL, Sukalo A, Topaloglu R, Van Hoeck K, Zagozdzon I, Jager KJ, Van Stralen KJ.
Demographics of paediatric renal replacement therapy in Europe: a report of the ESPN/ERA-EDTA registry.
Pediatr Nephrol. (2014);29: 2403-10. doi: 10.1007/s00467-014-2884-6.
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Wuhl E, van Stralen KJ, Wanner C, Ariceta G, Heaf JG, Bjerre AK, Palsson R, Duneau G, Hoitsma AJ, Ravani P, Schaefer F, Jager KJ.
Renal replacement therapy for rare diseases affecting the kidney: an analysis of the ERA-EDTA Registry.
Nephrol Dial Transplant (2014);29:Suppl 4: iv1-8. doi: 10.1093/ndt/gfu030
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Bonthuis M, van Stralen KJ, Jager KJ, Baiko S, Jahnukainen T, Laube GF, Podracka L, Seeman T, Tyerman K, Ulinski T, Groothoff JW, Schaefer F, Verrina E.
Dyslipidaemia in children on renal replacement therapy.
Nephrol Dial Transplant (2014);29: 594-603. doi: 10.1093/ndt/gft429.
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KJ van Stralen, D Borzych-Dualka, H Hataya, SE Kennedy, KJ Jager, E Verrina, C Inward, K Rannholm, K Vondrak, BA Warady, AM Zurowska, F Schaefer, and P Cochat
Survival and clinical outcomes of children starting renal replacement therapy in the neonatal period
Kidney International advance online publication 5 February 2014; doi: 10.1038/ki.2013.561
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Harambat J, van Stralen KJ, Verrina E, Groothoff JW, Schaefer F, Jager KJ; ESPN/ERA-EDTA Registry.
Likelihood of children with end-stage kidney disease in Europe to live with a functioning kidney transplant is mainly explained by nonmedical factors.
Pediatr Nephrol. 2013 Nov 15. [Epub ahead of print]
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Harambat J, Bonthuis M, van Stralen KJ, Ariceta G, Battelino N, Bjerre A, Jahnukainen T, Leroy V, Reusz G, Sandes AR, Sinha MD, Groothoff JW, Combe C, Jager KJ, Verrina E, Schaefer F; for the ESPN/ERA-EDTA Registry.
Adult Height in Patients with Advanced CKD Requiring Renal Replacement Therapy during Childhood.
Clin J Am Soc Nephrol. 2014 Jan;9(1):92-9.
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Bonthuis M, van Stralen KJ, Verrina E, Groothoff JW, Alonso Melgar A, Edefonti A, Fischbach M, Mendes P, Molchanova EA, Paripovic D, Peco-Antic A, Printza N, Rees L, Rubik J, Stefanidis CJ, Sinha MD, Zagozdzon I, Jager KJ, Schaefer F.
Underweight, overweight and obesity in paediatric dialysis and renal transplant patients.
Nephrol Dial Transplant. 2013 Nov;28 Suppl 4:iv195-iv204.
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Harambat J, van Stralen KJ, Schaefer F, Grenda R, Jankauskiene A, Kostic M, Macher MA, Maxwell H, Puretic Z, Raes A, Rubik J, S√łrensen SS, Toots U, Topaloglu R, T√∂nshoff B, Verrina E, Jager KJ.
Disparities in Policies, Practices and Rates of Pediatric Kidney Transplantation in Europe.
Am J Transplant. 2013 May 29. doi: 10.1111/ajt.12288.
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Van Stralen KJ, Verrina E, Belingheri M, Dudley J, Dusek J, Grenda R, Macher MA, Puretic Z, Rubic J, Rudaitis S, Rudin C, Schaefer F, Jager KJ; ESPN/ERA-EDTA Registry.
Impact of graft loss among kidney diseases with a high risk of post-transplant recurrence in the paediatric population.
Nephrol Dial Transplant. 2013 Apr;28(4):1031-8.
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Wuhl E, van Stralen KJ, Verrina E, Bjerre A, Wanner C, Heaf JG, Zurriaga O, Hoitsma A, Niaudet P, Palsson R, Ravani P, Jager KJ, Schaefer F.
Timing and Outcome of Renal Replacement Therapy in Patients with Congenital Malformations of the Kidney and Urinary Tract.
Clin J Am Soc Nephrol. 2013 Jan;8(1):67-74.
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Bonthuis M, van Stralen KJ, Verrina E, Edefonti A, Molchanova EA, Hokken-Koelega AC, Schaefer F, Jager KJ.
Use of national and international growth charts for studying height in European children: development of up-to-date European height-for-age charts.
PLoS One. 2012;7(8):e42506. doi: 10.1371/journal.pone.0042506. Epub 2012 Aug 15.
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van Stralen KJ, Krischock L, Schaefer F, Verrina E, Groothoff JW, Evans J, Heaf J, Ivanov D, Kostic M, Maringhini S, Podrack√° L, Printza N, Pundziene B, Reusz GS, Vondrak K, Jager KJ, Tizard EJ; on behalf of the ESPN/ERA-EDTA Registry.
Prevalence and predictors of the sub-target Hb level in children on dialysis.
Nephrol Dial Transplant. 2012 Oct;27(10):3950-7
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Harambat J, van Stralen KJ, Espinosa L, Groothoff JW, Hulton SA, Cerkauskiene R, Schaefer F, Verrina E, Jager KJ, Cochat P
Characteristics and Outcomes of Children with Primary Oxalosis Requiring Renal Replacement Therapy.
Clin J Am Soc Nephrol. 2012 Mar;7(3):458-65.
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Harambat J, van Stralen KJ, Kim JJ, Tizard EJ
Epidemiology of chronic kidney disease in children.
Pediatr Nephrol. 2012;27:507.
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Van Stralen KJ, Emma F, Jager KJ, Verrina E, Schaefer F, Laube GF, Lewis MA, Levtchenko EN.
Improvement in the Renal Prognosis in Nephropathic Cystinosis.
Clin J Am Soc Nephrol. 2011;6:2485-91
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Kramer AM, van Stralen KJ, Jager KJ, Schaefer F, Verrina E, Seeman T, Lewis MA, Boehm M, Simonetti GD, Novljan G, Groothoff JW
Demographics of blood pressure and hypertension in children on renal replacement therapy in Europe.
Kidney Int. 2011;80:1092-8
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van Stralen KJ, Jager KJ, Verrina E, Schaefer F, Emma F
Suggested revision of the National High Blood Pressure Education Program blood pressure standardization for use in severely growth retarded children
Pediatr Nephrol. 2011;26:819-20.
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van Stralen KJ, Tizard EJ, Jager KJ, Schaefer F, Vondrak K, Groothoff JW, PodrackŠ L, Holmberg C, Jankauskiené A, Lewis MA, van Damme-Lombaerts R, Mota C, Niaudet P, Novljan G, Peco-Antic A, Sahpazova E, Toots U, Verrina E.
Determinants of eGFR at start of renal replacement therapy in paediatric patients.
Nephrol Dial Transplant. 2010 25:3325-32.
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van Stralen KJ, Tizard EJ, Verrina E, Schaefer F, Jager KJ; on behalf of the European Society for Paediatric Nephrology/European Renal Association-European Dialysis and Transplant Association (ESPN/ERA-EDTA) registry study group.
Demographics of paediatric renal replacement therapy in Europe: 2007 annual report of the ESPN/ERA-EDTA registry.
Pediatr Nephrol. 2010 ;25:1379-82.
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Tizard EJ, Verrina E, van Stralen KJ, Jager KJ
Progress with the European Society for Paediatric Nephrology (ESPN)/ERA-EDTA Registry for children with established renal failure (ERF)
Nephrol Dial Transplant (2009) 1?3 doi: 10.1093/ndt/gfp275
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