ESPN/ERA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association
Department of Medical Informatics
Academic Medical Center
European Union

Published papers and abstracts

  
 
 
policies for authorship
 
 
Acrobat PDF
 
 
Bonthuis M, Bakkaloglu SA, Vidal E, Baiko S, Braddon F, Errichiello C, Francisco T, Haffner D, Lahoche A, Leszczynska B, Masalkiene J, Stojanovic J, Molchanova MS, Reusz G, Barba AR, Rosales A, Tegeltija S, Ylinen E, Zlatanova G, Harambat J, Jager KJ.
Associations of longitudinal height and weight with clinical outcomes in pediatric kidney replacement therapy: results from the ESPN/ERA Registry.
Pediatr Nephrol . 2023 Oct;38(10):3435-3443.
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Bakkaloğlu SA, Vidal E, Bonthuis M, Neto G, Paripović D, Åsberg A, Hijosa MM, Vondrak K, Jankauskiene A, Roussinov D, Awan A, Jager KJ.
European chronic kidney disease registries for children not on kidney replacement therapy: tools for improving health systems and patient-centred outcomes.
Clin Kidney J. 2023 Sep;16(11):1980-1985.
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Schild R, Dupont S, Harambat J, Vidal E, Balat A, Bereczki C, Bienias B, Brandström P, Broux F, Consolo S, Gojkovic I, Groothoff JW, Hommel K, Hubmann H, Braddon FEM, Pankratenko TE, Papachristou F, Plumb LA, Podracka L, Prokurat S, Bjerre A, Cordinhã C, Tainio J, Shkurti E, Spartà G, Vondrak K, Jager KJ, Oh J, Bonthuis M.
Disparities in treatment and outcome of kidney replacement therapy in children with comorbidities: an ESPN/ERA Registry study.
Clin Kidney J. 2023 Jan 12;16(4):745-755
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Boehm M, Bonthuis M, Aufricht C, Battelino N, Bjerre A, Edvardsson VO, Herthelius M, Hubmann H, Jahnukainen T, de Jong H, Laube GF, Mattozzi F, Molchanova EA, Muñoz M, Noyan A, Pape L, Printza N, Reusz G, Roussey G, Rubik J, Spasojevic-Dimitrijeva B, Seeman T, Ware N, Vidal E, Harambat J, Jager KJ, Groothoff J.
Kidney transplantation in small children: Association between body weight and outcome- A Report from the ESPN/ERA-EDTA Registry.
Transplantation. 2022 Mar 1;106(3):607-614
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Bonthuis M, Harambat J, Jager KJ, Vidal E.
Growth in children on kidney replacement therapy: a review of data from patient registries.
Pediatr Nephrol. 2021 Aug;36(8):2536-2574
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Bonthuis M, Vidal E, Bjerre A, Aydog Ö, Baiko S, Garneata L, Guzzo I, Heaf JG, Jahnukainen T, Lilien M, Mallett T, Mirescu G, Mochanova EA, Nüsken E, Rascher K, Roussinov D, Szczepanska M, Tsimaratos M, Varvara A, Verrina E, Veselinovic B, Jager KJ, Harambat J.
Ten-year trends in epidemiology and outcomes of pediatric kidney replacement therapy in Europe: data from the ESPN/ERA-EDTA Registry.
Pediatr Nephrol. 2021 Aug;36(8):2337-2348
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Bonthuis M, Cuperus L, Chesnaye NC, Akman S, Melgar AA, Baiko S, Bouts AH, Boyer O, Dimitrova K, Carmo CD, Grenda R, Heaf J, Jahnukainen T, Jankauskiene A, Kaltenegger L, Kostic M, Marks SD, Mitsioni A, Novljan G, Palsson R, Parvex P, Podracka L, Bjerre A, Seeman T, Slavicek J, Szabo T, Tönshoff B, Torres DD, Van Hoeck KJ, Ladfors SW, Harambat J, Groothoff JW, Jager KJ.
Results in the ESPN/ERA-EDTA Registry suggest disparities in access to kidney transplantation but little variation in graft survival of children across Europe.
Kidney Int. 2020 Aug;98(2):464-475
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Bonthuis M, Groothoff JW, Ariceta G, Baiko S, Battelino N, Bjerre A, Cransberg K, Kolvek G, Maxwell H, Miteva P, Molchanova MS, Neuhaus TJ, Pape L, Reusz G, Rousset-Rouviere C, Sandes AR, Topaloglu R, Van Dyck M, Ylinen E, Zagozdzon I, Jager KJ, Harambat.
Growth patterns after kidney transplantation in European children over the past 25 years: An ESPN/ERA-EDTA Registry Study.
Transplantation. 2020 Jan;104(1):137-144
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Preka E, Bonthuis M, Harambat J, Jager KJ.
Think twice before postponing chronic dialysis in children.
J Am Soc Nephrol. 2019 Dec;30(12):2473-2474
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Preka E, Bonthuis M, Harambat J, Jager KJ, Groothoff JW, Baiko S, Bayazit AK, Boehm M, Cvetkovic M, Edvardsson VO, Fomina S, Heaf JG, Holtta T, Kis E, Kolvek G, Koster-Kamphuis L, Molchanova EA, Munoz M, Neto G, Novljan G, Printza N, Sahpazova E, Sartz L, Sinha MD, Vidal E, Vondrak K, Vrillon I, Weber LT, Weitz M, Zagozdzon I, Stefanidis CJ, Bakkaloglu SA.
Association between timing of dialysis initiation and clinical outcomes in the paediatric population: an ESPN/ERA-EDTA registry study.
Nephrol Dial Transplant. 2019 Nov 1;34(11):1932-1940
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Drube J, Wan M, Bonthuis M, Wühl E, Bacchetta J, Santos F, Grenda R, Edefonti A, Harambat J, Shroff R, Tönshoff B, Haffner D; European Society for Paediatric Nephrology Chronic Kidney Disease Mineral and Bone Disorders, Dialysis, and Transplantation Working Groups.
Clinical practice recommendations for growth hormone treatment in children with chronic kidney disease.
Nat Rev Nephrol. 2019 Sep;15(9):577-589
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Boehm M, Bonthuis M, Noordzij M, Harambat J, Groothoff JW, Melgar ÁA, Buturovic J, Dusunsel R, Fila M, Jander A, Koster-Kamphuis L, Novljan G, Ortega PJ, Paglialonga F, Saravo MT, Stefanidis CJ, Aufricht C, Jager KJ, Schaefer F.
Hemodialysis vascular access and subsequent transplantation: a report from the ESPN/ERA-EDTA Registry.
Pediatr Nephrol. 2019 Apr;34(4):713-721
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Bonthuis M, Harambat J, Bérard E, Cransberg K, Duzova A, Garneata L, Herthelius M, Lungu AC, Jahnukainen T, Kaltenegger L, Ariceta G, Maurer E, Palsson R, Sinha MD, Testa S, Groothoff JW, Jager KJ; ESPN/ERA-EDTA Registry.
Recovery of kidney function in children treated with maintenance dialysis.
Clin J Am Soc Nephrol. 2018 Oct 8;13(10):1510-1516
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Chesnaye NC, van Stralen KJ, Bonthuis M, Harambat J, Groothoff JW, Jager KJ.
Survival in children requiring chronic renal replacement therapy.
Pediatr Nephrol. 2018 Apr;33(4):585-594
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Yalcinkaya F, Bonthuis M, Erdogan BD, van Stralen KJ, Baiko S, Chehade H, Maxwell H, Montini G, Rönmholm K, Sørensen SS, Ulinski T, Verrina E, Weber S, Harambat J, Schaefer F, Jager KJ, Groothoff JW.
Outcomes of renal replacement therapy in boys with prune belly syndrome: findings from the ESPN/ERA-EDTA Registry.
Pediatr Nephrol. 2018 Jan;33(1):117-124
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Chesnaye NC, van Stralen KJ, Bonthuis M, Groothoff JW Harambat J, Schaefer F, Canpolat N, Garnier A, Heaf J, de Jong H, Schwartz Sørenson S, Tönshoff B, Jager KJ.
The association of donor and recipient age with graft survival in paediatric renal transplant recipients in a European Society for Paediatric Nephrology/European Renal Association-European Dialysis and Transplantation Association Registry study.
Nephrol Dial Transplant. 2017 Nov 1;32(11):1949-1956
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Tjaden LA, Jager KJ, Bonthuis M, Kuehni CE, Lilien MR, Seeman T, Stefanidis CJ, Tse Y, Harambat J, Groothoff JW, Noordzij M.
Racial variation in cardiovascular disease risk factors among European children on renal replacement therapy-results from the European Society of Paediatric Nephrology/European Renal Association - European Dialysis and Transplant Association Registry.
Nephrol Dial Transplant. 2017 Nov 1;32(11):1908-1917
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Chesnaye NC, Schaefer F, Bonthuis M, Holman R, Baiko S, Baskin E, Bjerre A, Cloarec S, Cornelissen EA, Espinosa L, Heaf J, Stone R, Shtiza D, Zagozdzon I, Harambat J, Jager KJ, Groothoff JW, van Stralen KJ; ESPN/ERA-EDTA Registry Committee.
Mortality risk disparities in children receiving chronic renal replacement therapy for the treatment of end-stage renal disease across Europe: an ESPN-ERA/EDTA registry analysis.
Lancet. 2017 May 27;389(10084):2128-2137
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Vidal E, van Stralen KJ, Chesnaye NC, Bonthuis M, Holmberg C, Zurowska A, Trivelli A, Da Silva JEE, Herthelius M, Adams B, Bjerre A, Jankauskiene A, Miteva P, Emirova K, Bayazit AK, Mache CJ, Sánchez-Moreno A, Harambat J, Groothoff JW, Jager KJ, Schaefer F, Verrina E; ESPN/ERA-EDTA Registry.
Infants Requiring Maintenance Dialysis: Outcomes of Hemodialysis and Peritoneal Dialysis.
Am J Kidney Dis. 2017 May;69(5):617-625.
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Holttä T, Bonthuis M, Van Stralen KJ, Bjerre A, Topaloglu R, Ozaltin F, Holmberg C, Harambat J, Jager KJ, Schaefer F, Groothoff JW
Timing of renal replacement therapy does not influence survival and growth in children with congenital nephrotic syndrome caused by mutations in NPHS1: data from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2016 Dec;31(12):2317-2325.
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Harambat J, Bonthuis M, Groothoff JW, Schaefer F, Tizard EJ, Verrina E, van Stralen KJ, Jager KJ
Lessons learned from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2016 Nov;31(11):2055-2064.
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Mekahli D, van Stralen KJ, Bonthuis M, Jager KJ, Balat A, Benetti E, Godefroid N, Edvardsson VO, Heaf JG, Jankauskiene A, Kerecuk L, Marinova S, Puteo F, Seeman T, Zurowska A, Pirenne J, Schaefer F, Groothoff JW; ESPN/ERA-EDTA Registry
Kidney Versus Combined Kidney and Liver Transplantation in Young People With Autosomal Recessive Polycystic Kidney Disease: Data From the European Society for Pediatric Nephrology/European Renal Association-European Dialysis and Transplant (ESPN/ERA-EDTA) Registry
Am J Kidney Dis. 2016 Nov;68(5):782-788
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Hogan J, Couchoud C, Bonthuis M, Groothoff JW, Jager KJ, Schaefer F, Van Stralen KJ
Gender Disparities in Access to Pediatric Renal Transplantation in Europe
Am J Transplant. 2016 Jul;16(7):2097-2105.
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Chesnaye NC, Schaefer F, Groothoff JW, Bonthuis M, Reusz G, Heaf JG, Lewis M, Maurer E, Paripovic D, Zagozdzon I, van Stralen KJ, Jager KJ
Mortality risk in European children with end-stage renal disease on dialysis
Kidney Int. 2016 Jun;89(6):1355-1362.
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van Huis M, Bonthuis M, Sahpazova E, Mencarelli F, Spasojevic B, Reusz G, Caldas-Afonso A, Bjerre A, Baiko S, Vondrak K, Molchanova EA, Kolvek G, Zaikova N, Bohm M, Ariceta G, Jager KJ, Schaefer F, van Stralen KJ, Groothoff JW.
Considerable variations in growth hormone policy and prescription in paediatric end-stage renal disease across European countries-a report from the ESPN/ERA-EDTA registry.
Nephrol Dial Transplant. 2016 Apr;31(4):609-619.
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Tjaden LA, Noordzij M, van Stralen KJ, Kuehni CE, Raes A, Cornelissen EA, O'Brien C, Papachristou F, Schaefer F, Groothoff JW, Jager KJ; ESPN/ERA-EDTA Registry Study Group
Racial Disparities in Access to and Outcomes of Kidney Transplantation in Children, Adolescents, and Young Adults
Am J Kidney Dis. 2016 Feb;67(2):293-301.
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Krischock LA, van Stralen KJ, Verrina E, Tizard EJ, Bonthuis M, Reusz G, Hussain FK, Jankauskiene A, Novljan G, Spasojevic-Dimitrijeva B, Podracka L, Zaller V, Jager KJ, Schaefer F; ESPN/ERA-EDTA Registry.
Anemia in children following renal transplantation-results from the ESPN/ERA-EDTA Registry
Pediatr Nephrol. 2016 Feb;31(2):325-333.
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Lofaro D, Jager KJ, Abu-Hanna A, Groothoff JW, Arikoski P, Hoecker B, Roussey-Kesler G, Spasojevic B, Verrina E, Schaefer F, van Stralen KJ; ESPN/ERA-EDTA Registry.
Identification of subgroups by risk of graft failure after paediatric renal transplantation: application of survival tree models on the ESPN/ERA-EDTA Registry.
Nephrol Dial Transplant. 2016 Feb;31(2):317-324.
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Chesnaye NC, Schaefer F, Groothoff JW, Caskey FJ, Heaf JG, Kushnirenko S, Lewis M, Mauel R, Maurer E, Merenmies J, Shtiza D, Topaloglu R, Zaicova N, Zampetoglou A, Jager KJ, van Stralen KJ
Disparities in treatment rates of paediatric end-stage renal disease across Europe: insights from the ESPN/ERA-EDTA registry
Nephrol Dial Transplant. 2015 Aug;30(8):1377-1385
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Bonthuis M, Busutti M, van Stralen KJ, Jager KJ, Baiko S, Bakkaloglu S, Battelino N, Gaydarova M, Gianoglio B, Parvex P, Gomes C, Heaf JG, Podracka L, Kuzmanovska D, Molchanova MS, Pankratenko TE, Papachristou F, Reusz G, Sanahuja MJ, Shroff R, Groothoff JW, Schaefer F, Verrina E.
Mineral Metabolism in European Children Living with a Renal Transplant: A European Society for Paediatric Nephrology/European Renal Association-European Dialysis and Transplant Association Registry Study
Clin J Am Soc Nephrol. 2015 May 7;10(5):767-775.
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Chesnaye N, Bonthuis M, Schaefer F, Groothoff JW, Verrina E, Heaf JG, Jankauskiene A, Lukosiene V, Molchanova EA, Mota C, Peco-Antic A, Ratsch IM, Bjerre A, Roussinov DL, Sukalo A, Topaloglu R, Van Hoeck K, Zagozdzon I, Jager KJ, Van Stralen KJ.
Demographics of paediatric renal replacement therapy in Europe: a report of the ESPN/ERA-EDTA registry.
Pediatr Nephrol. 2014 Dec;29(12):2403-2410.
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Wuhl E, van Stralen KJ, Wanner C, Ariceta G, Heaf JG, Bjerre AK, Palsson R, Duneau G, Hoitsma AJ, Ravani P, Schaefer F, Jager KJ.
Renal replacement therapy for rare diseases affecting the kidney: an analysis of the ERA-EDTA Registry.
Nephrol Dial Transplant. 2014 Sep;29:Suppl 4: iv1-8. 
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KJ van Stralen, D Borzych-Dualka, H Hataya, SE Kennedy, KJ Jager, E Verrina, C Inward, K Rannholm, K Vondrak, BA Warady, AM Zurowska, F Schaefer, and P Cochat
Survival and clinical outcomes of children starting renal replacement therapy in the neonatal period.
Kidney Int. 2014 Jul;86(1):168-174.
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Bonthuis M, van Stralen KJ, Jager KJ, Baiko S, Jahnukainen T, Laube GF, Podracka L, Seeman T, Tyerman K, Ulinski T, Groothoff JW, Schaefer F, Verrina E.
Dyslipidaemia in children on renal replacement therapy.
Nephrol Dial Transplant. 2014 Mar;29(3): 594-603.
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Harambat J, van Stralen KJ, Verrina E, Groothoff JW, Schaefer F, Jager KJ; ESPN/ERA-EDTA Registry.
Likelihood of children with end-stage kidney disease in Europe to live with a functioning kidney transplant is mainly explained by nonmedical factors.
Pediatr Nephrol. 2014 Mar;29(3):453-459.
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Harambat J, Bonthuis M, van Stralen KJ, Ariceta G, Battelino N, Bjerre A, Jahnukainen T, Leroy V, Reusz G, Sandes AR, Sinha MD, Groothoff JW, Combe C, Jager KJ, Verrina E, Schaefer F; for the ESPN/ERA-EDTA Registry.
Adult Height in Patients with Advanced CKD Requiring Renal Replacement Therapy during Childhood.
Clin J Am Soc Nephrol. 2014 Jan;9(1):92-99.
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Bonthuis M, van Stralen KJ, Verrina E, Groothoff JW, Alonso Melgar A, Edefonti A, Fischbach M, Mendes P, Molchanova EA, Paripovic D, Peco-Antic A, Printza N, Rees L, Rubik J, Stefanidis CJ, Sinha MD, Zagozdzon I, Jager KJ, Schaefer F.
Underweight, overweight and obesity in paediatric dialysis and renal transplant patients.
Nephrol Dial Transplant. 2013 Nov;28 Suppl 4:iv195-iv204.
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Harambat J, van Stralen KJ, Schaefer F, Grenda R, Jankauskiene A, Kostic M, Macher MA, Maxwell H, Puretic Z, Raes A, Rubik J, Sørensen SS, Toots U, Topaloglu R, Toenshoff B, Verrina E, Jager KJ.
Disparities in Policies, Practices and Rates of Pediatric Kidney Transplantation in Europe.
Am J Transplant. 2013 Aug;13(8):2066-2074.
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Van Stralen KJ, Verrina E, Belingheri M, Dudley J, Dusek J, Grenda R, Macher MA, Puretic Z, Rubic J, Rudaitis S, Rudin C, Schaefer F, Jager KJ; ESPN/ERA-EDTA Registry.
Impact of graft loss among kidney diseases with a high risk of post-transplant recurrence in the paediatric population.
Nephrol Dial Transplant. 2013 Apr;28(4):1031-1038.
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Wuhl E, van Stralen KJ, Verrina E, Bjerre A, Wanner C, Heaf JG, Zurriaga O, Hoitsma A, Niaudet P, Palsson R, Ravani P, Jager KJ, Schaefer F.
Timing and Outcome of Renal Replacement Therapy in Patients with Congenital Malformations of the Kidney and Urinary Tract.
Clin J Am Soc Nephrol. 2013 Jan;8(1):67-74.
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van Stralen KJ, Krischock L, Schaefer F, Verrina E, Groothoff JW, Evans J, Heaf J, Ivanov D, Kostic M, Maringhini S, Podracká L, Printza N, Pundziene B, Reusz GS, Vondrak K, Jager KJ, Tizard EJ; on behalf of the ESPN/ERA-EDTA Registry.
Prevalence and predictors of the sub-target Hb level in children on dialysis.
Nephrol Dial Transplant. 2012 Oct;27(10):3950-3957.
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Bonthuis M, van Stralen KJ, Verrina E, Edefonti A, Molchanova EA, Hokken-Koelega AC, Schaefer F, Jager KJ.
Use of national and international growth charts for studying height in European children: development of up-to-date European height-for-age charts.
PLoS One. 2012;7(8):e42506. 
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Harambat J, van Stralen KJ, Espinosa L, Groothoff JW, Hulton SA, Cerkauskiene R, Schaefer F, Verrina E, Jager KJ, Cochat P
Characteristics and Outcomes of Children with Primary Oxalosis Requiring Renal Replacement Therapy.
Clin J Am Soc Nephrol. 2012 Mar;7(3):458-465.
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Harambat J, van Stralen KJ, Kim JJ, Tizard EJ
Epidemiology of chronic kidney disease in children.
Pediatr Nephrol. 2012 Mar;27(3):363-373.
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Kramer AM, van Stralen KJ, Jager KJ, Schaefer F, Verrina E, Seeman T, Lewis MA, Boehm M, Simonetti GD, Novljan G, Groothoff JW
Demographics of blood pressure and hypertension in children on renal replacement therapy in Europe.
Kidney Int. 2011 Nov;80(10):1092-1098
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Van Stralen KJ, Emma F, Jager KJ, Verrina E, Schaefer F, Laube GF, Lewis MA, Levtchenko EN.
Improvement in the Renal Prognosis in Nephropathic Cystinosis.
Clin J Am Soc Nephrol. 2011 Oct;6(10):2485-2491.
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van Stralen KJ, Jager KJ, Verrina E, Schaefer F, Emma F
Suggested revision of the National High Blood Pressure Education Program blood pressure standardization for use in severely growth retarded children
Pediatr Nephrol. 2011 May;26(5):819-820.
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van Stralen KJ, Tizard EJ, Jager KJ, Schaefer F, Vondrak K, Groothoff JW, Podracká L, Holmberg C, Jankauskiené A, Lewis MA, van Damme-Lombaerts R, Mota C, Niaudet P, Novljan G, Peco-Antic A, Sahpazova E, Toots U, Verrina E.
Determinants of eGFR at start of renal replacement therapy in paediatric patients.
Nephrol Dial Transplant. 2010 Oct;25(10):3325-3332.
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van Stralen KJ, Tizard EJ, Verrina E, Schaefer F, Jager KJ; on behalf of the European Society for Paediatric Nephrology/European Renal Association-European Dialysis and Transplant Association (ESPN/ERA-EDTA) registry study group.
Demographics of paediatric renal replacement therapy in Europe: 2007 annual report of the ESPN/ERA-EDTA registry.
Pediatr Nephrol. 2010 Jul;25(7):1379-1382.
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Tizard EJ, Verrina E, van Stralen KJ, Jager KJ
Progress with the European Society for Paediatric Nephrology (ESPN)/ERA-EDTA Registry for children with established renal failure (ERF).
Nephrol Dial Transplant 2009 Sep;24(9):2615-2617.
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