ESPN/ERA-EDTA Registry

European Registry for Children on Renal Replacement Therapy

 

European Society for Paediatric Nephrology
European Renal Association - European Dialysis and Transplant Association
Department of Medical Informatics
Academic Medical Center
European Union

Privacy policy

By means of this privacy policy, we would like to inform you as a user of the ESPN/ERA-EDTA Registry website of the nature, scope, and purpose of the personal data the ESPN/ERA-EDTA Registry collects, uses and processes when you call up and navigate through the ESPN/ERA-EDTA Registry website. Furthermore, you are informed, by means of this privacy policy, of the rights to which you are entitled. The processing of these personal data, shall always be in line with the General Data Protection Regulation (GDPR). This privacy statement only covers the ESPN/ERA-EDTA Registry website. It does not cover all websites that can be linked to from this website.

What information is collected when using the ESPN/ERA-EDTA Registry website?

The ESPN/ERA-EDTA Registry collects information when you call up, or navigate through, the ESPN/ERA-EDTA Registry website. This general data and information are stored in the server log files. Collected may be (1) the date and time of access to the website, (2) the subpages visited and files viewed on the website, and (3) an Internet protocol address (IP address).

Purpose

The log data on requests and transactions obtained when visiting the ESPN/ERA-EDTA Registry website is used for troubleshooting, usage statistics and analytics, quality assurance, and to monitor system security and can be analyzed to that end. The ESPN/ERA-EDTA Registry can publish anonymous website usage statistics under the condition that no personally identifiable information can be derived from such statistics.

Other parties

The ESPN/ERA-EDTA Registry does not transfer log data on website requests and transactions from visitors of the ESPN/ERA-EDTA Registry website to any other company or authority.

Security

The ESPN/ERA-EDTA Registry takes the security of the log data on website requests and transactions very seriously. We have measures in place to protect your data from misuse, interference, loss, unauthorized access, modification or disclosure.

Routine erasure of personal data

The ESPN/ERA-EDTA Registry shall process and store your log data on website requests and transactions only for the period necessary to achieve the purpose of storage, or as far as this is granted by the European legislator or other legislators in laws or regulations to which the ESPN/ERA-EDTA Registry is subject to.

Your rights

You have the right granted by the European legislator to obtain from the ESPN/ERA-EDTA Registry regarding the log data on requests and transactions obtained when you use the ESPN/ERA-EDTA Registry website:

  • The confirmations as to whether or not these data are being processed,
  • Free information about these data stored at any time and a copy of this information,
  • The rectification of inaccurate data concerning yourself,
  • The erasure of this data concerning yourself without undue delay
If you wish to exercise this right of confirmation, access, rectification, or erasure, please contact the ESPN/ERA-EDTA Registry at espn-reg@amc.uva.nl.

Changes to our privacy policy

If our privacy policy changes, the ESPN/ERA-EDTA Registry will place an updated version on this page. Regularly reviewing the page ensures that you are always aware of what information we collect, how we use it and under what circumstances, if any, we will share it with other parties.

Contact us

If you have any questions about this privacy policy, please email us at espn-reg@amc.uva.nl.